On September 17th, 2011, we were honored to have participated in the 7th Annual Greater New York Walk and Roll for Families with Spinal Muscular Atrophy held in honor of Keira Sweeney. Spinal Muscular Atrophy (SMA) is a motor neuron disease that affects the voluntary muscles used for activities such as crawling, walking, head and neck control, and swallowing. It is the number one genetic killer of children under the age of 2. Approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. Although The National Institute of Health says they are close to finding a cure, currently there is no cure or treatment for SMA.
FSMA is aiming to fund two new preclinical drug development programs in 2011, with more to follow. In addition to progress on the research front, new opportunities are emerging that will improve medical care and the quality of life for SMA patients. At this event, over $67,000 was donated to help make it possible for researchers and doctors to find a treatment and ultimately a cure for this heartbreaking disease.
If you would like to donate to help find a cure for Spinal Muscular Atrophy:
We have also posted photos of the event on our facebook page.